Tag Archives: education

“It became easier once I knew”: Stakeholder perspectives for educating children and teenagers about their difference of sex development

Erica M Weidler 1, Kristina I Suorsa-Johnson 2, Alison S Baskin 3, Angela Fagerlin 4, Melissa D Gardner 5, Meilan M Rutter 6, Tara Schafer-Kalkhoff 7, Kathleen van Leeuwen 1, David E Sandberg 8 Affiliations expand Abstract Objective: Secrecy about a child’s difference of sex development (DSD) can lead to internalized shame and stigma. We explored how teenagers and … Continue reading

Posted in DSD Research Highlights | Tagged , , , | Leave a comment

Creation of an Electronic Resource Repository for Differences of Sex Development (DSD): Collaboration Between Advocates & Clinicians in the DSD-TRN

Meilan M Rutter 1 2 3, Miriam Muscarella 1 4 5, Janet Green 1 4, Gnendy Indig 1 4 6, Alexandra von Klan 1 4 7, Kimberly Kennedy 1 3, Erica M Weidler1 4 8, Margaret Barrett 9, David E Sandberg 1 10, DSD-Translational Research Network PMID: 35636406 DOI: 10.1159/000524629 Abstract Introduction: People with differences of sex development (DSD) and their families need education about these conditions while receiving emotional and peer support … Continue reading

Posted in DSD Research Highlights | Tagged , , , | Leave a comment

F1000 Commentary: Disorders of Sex Development-When and How to Tell the Patient

Austin J, Tamar-Mattis A, Mazur T, Henwood MJ, Rossi WC: Pediatr Endocrinol Rev. 2011; 8:213-7 DOI: 10.3410/f.13398997.14768117 Abstract Physicians and other providers are often confronted with difficult decisions in the area of disclosure. This article examines a hypothetical situation relevant to … Continue reading

Posted in F1000 Archives | Tagged , , , , , , , , , | Leave a comment