Tag Archives: DSD

“It became easier once I knew”: Stakeholder perspectives for educating children and teenagers about their difference of sex development

Erica M Weidler 1, Kristina I Suorsa-Johnson 2, Alison S Baskin 3, Angela Fagerlin 4, Melissa D Gardner 5, Meilan M Rutter 6, Tara Schafer-Kalkhoff 7, Kathleen van Leeuwen 1, David E Sandberg 8 Affiliations expand Abstract Objective: Secrecy about a child’s difference of sex development (DSD) can lead to internalized shame and stigma. We explored how teenagers and … Continue reading

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Creation of an Electronic Resource Repository for Differences of Sex Development (DSD): Collaboration Between Advocates & Clinicians in the DSD-TRN

Meilan M Rutter 1 2 3, Miriam Muscarella 1 4 5, Janet Green 1 4, Gnendy Indig 1 4 6, Alexandra von Klan 1 4 7, Kimberly Kennedy 1 3, Erica M Weidler1 4 8, Margaret Barrett 9, David E Sandberg 1 10, DSD-Translational Research Network PMID: 35636406 DOI: 10.1159/000524629 Abstract Introduction: People with differences of sex development (DSD) and their families need education about these conditions while receiving emotional and peer support … Continue reading

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F1000 Commentary: Changes over time in sex assignment for disorders of sex development.

Kolesinska Z, Ahmed SF, Niedziela M, Bryce J, Molinska-Glura M, Rodie M, Jiang J, Sinnott RO, Hughes IA, Darendelier F, Hiort O, van der Zwan Y, Cools M, Guran T, Holterhus PM, Bertelloni S, Lisa L, Arlt W, Krone N, … Continue reading

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F1000 Commentary: Brain responses to sexual images in 46, XY women with complete androgen insensitivity syndrome are female typical.

Hamann S, Stevens J, Vick JH, Bryk K, Quigley CA, Berenbaum SA, Wallen K. Horm. Behav. 2014 Oct 2 DOI:10.1016/j.yhbeh.2014.09.013 Abstract   Androgens, estrogens, and sex chromosomes are the major influences guiding sex differences in brain development, yet their relative … Continue reading

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F1000 Commentary: Evaluation of terminology used to describe disorders of sex development

Davies JH, Knight EJ, Savage A, Brown J, Malone PS. J Pediatr Urol. 2011 Aug; 7(4):412-5 DOI:10.1016/j.jpurol.2010.07.004 Abstract   OBJECTIVE: The terminology used to describe abnormalities of sex determination and sex differentiation was revised in 2006. It was anticipated that new terms, such as ‘disorders of sex development’ … Continue reading

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F1000 Commentary: High prevalence of micropenis in 2710 male newborns from an intensive-use pesticide area of Northeastern Brazil

Gaspari L, Sampaio DR, Paris F, Audran F, Orsini M, Neto JB, Sultan C. DOI:10.3410/f.717973543.793470158 Abstract  Exposure to endocrine-disrupting chemicals (EDCs) has been suggested to contribute to the increasing trends of external genital malformation in male newborns. In Northeastern Brazil, … Continue reading

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F1000 Commentary: Gender Identity and Coping in Female 46, XY Adults with Androgen Biosynthesis Deficiency (Intersexuality/DSD)

Schweizer K, Brunner F, Schonbucher V, Richter-Appelt H. J Couns Psychol. 2009; 56:189-201 DOI: 10.1037/a0013575 Abstract Individuals living with an intersex condition have not received much attention in counseling psychology, although a high need for psychosocial care is obvious. Using a … Continue reading

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F1000 Commentary: Genital surgery for disorders of sex development: implementing a shared decision-making approach

Karkazis K, Tamar-Mattis A, Kon AA.. J Pediatr Endorinol Metab. 2010;23:789-806 DOI: 10.1515/jpem.2010.129 Abstract   Ongoing controversy surrounds early genital surgery for children with disorders of sex development, making decisions about these procedures extraordinarily complex. Professional organizations have encouraged healthcare providers to … Continue reading

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F1000 Commentary: Disorders of Sex Development-When and How to Tell the Patient

Austin J, Tamar-Mattis A, Mazur T, Henwood MJ, Rossi WC: Pediatr Endocrinol Rev. 2011; 8:213-7 DOI: 10.3410/f.13398997.14768117 Abstract Physicians and other providers are often confronted with difficult decisions in the area of disclosure. This article examines a hypothetical situation relevant to … Continue reading

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