Interdisciplinary care in disorders/differences of sex development (DSD): The psychosocial component of the DSD—Translational research network / Why is there a disconnect between AAP recommendations and what exists for families?

A number of institutional barriers persist. These include an absence of qualified specialists in psychology, genetic counseling, and social work, as well as an absence of adequate reimbursement systems for team care. Additionally, some of the specialists required for a quality DSD team are not accustomed to working collaboratively, and so in some cases they simply do not know each other and do not know how to set up the needed collaboration.

Accord Alliance is specifically dedicated to fostering team care for DSD. We send representatives to nascent and experienced teams to share best practices and to support adherence to the AAP recommendations.