Turner Syndrome

Magic Foundation

Focus: AIS, CAH, epispadias, hypospadias, Klinefelter Syndrome,

Mayer-Rokitansky-Kuster-Hauser Syndrome, Turner Syndrome

Major Aspects of Growth In Children (MAGIC) is made up of 25,000 + families whose children (and affected adults) have growth hormone deficiency or other medical conditions which affect their growth. They have a subgroup called Genital and Reproductive Anomalies in Children.

Visit: Magic Foundation

Turner Syndrome Society of the US

Focus: Turner Syndrome

The members of our society have offered a wealth of support for over 20 years. We understand that every person’s needs are unique as Turner syndrome affects each girl and woman in a different way.

Education is our foremost goal whether you are a member of our society or a guest you can access, for free, all educational and medical information. Our most popular items are the Turner Syndrome Clinical Guidelines, National Conference, Volunteer Support (parents and adult women that “have been where you are”), and Local Chapter and Support Group information.

Visit: Turner Syndrome Society of the US

Latest

Quality Care Indicators

View a summary of indicators of high-quality interdisciplinary care for children with disorders of sex development (DSD).

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Review Expert Presentations

Pediatric Academic Societies Mini-Course on DSD Disclosure, University of Michigan DSD Research and Quality Improvement Symposium, and more.

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Questions Answered

Find clear answers to common questions about disorders of sex development (DSD) at Accord Alliance's Frequently Asked Questions page.

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Clinical Pearls

At the Accord Alliance blog, specialists on dedicated DSD teams share their experiences with team-building, reimbursement issues, and more.

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Meetings Upcoming

Find dates and informational links for conferences on disorders of sex development (DSD), including meetings of clinicians and support groups.

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