1. Skip to Menu
  2. Skip to Content
  3. Skip to Footer>

PDF  | Print |  Email

AIS

Androgen Insensitivity Support Group

Focus: AIS

The Androgen Insensitivity Syndrome Support Group (AISSG) is a consortium of worldwide support groups that owe their origins to the UK-based group which was started in 1988. AISSG provides information and support to young people, adults and families affected by XY-female conditions such as complete and partial Androgen Insensitivity Syndrome or AIS (old name Testicular Feminization Syndrome or Testicular Feminisation Syndrome). They also support those affected by Swyer's Syndrome (XY Gonadal Dysgenesis), 5-alpha Reductase Deficiency,Leydig Cell Hypoplasia, Mayer-Rokitansky-Kuster-Hauser (MRKH) Syndrome, Mullerian Dysgenesis, Mullerian Duct Aplasia, Vaginal Atresia, and other related conditions. Some information is provided in multiple languages.

Visit: Androgen Insensitivity Support Group (USA)
Androgen Insensitivity Support Group (UK, but contains much valuable information)

Magic Foundation

Focus: AIS, CAH, epispadias, hypospadias, Klinefelter Syndrome,
Mayer-Rokitansky-Kuster-Hauser Syndrome, Turner Syndrome
Major Aspects of Growth In Children (MAGIC) is made up of 25,000+ families whose children (and affected adults) have growth hormone deficiency or other medical conditions which affect their growth. They have a subgroup called Genital and Reproductive Anomalies in Children.

Visit: Magic Foundation

Quality Care Indicators

View a summary of indicators of high-quality interdisciplinary care for children with disorders of sex development (DSD).

Click to view.

Review Expert Presentations

Pediatric Academic Societies Mini-Course on DSD Disclosure, University of Michigan DSD Research and Quality Improvement Symposium, and more.

Click to review.

Questions Answered

Find clear answers to common questions about disorders of sex development (DSD) at Accord Alliance's Frequently Asked Questions page.

Click to access.

Clinical Pearls

At the Accord Alliance blog, specialists on dedicated DSD teams share their experiences with team-building, reimbursement issues, and more.

Click to read the blog.

Meetings Upcoming

Find dates and informational links for conferences on disorders of sex development (DSD), including meetings of clinicians and support groups.

Click to view.