AbstractIntroduction: Social support can be a protective factor against the negative mental health outcomes experienced by some parents and caregivers of children with differences of sex development (DSD). However, established social support networks can be difficult to access due to … Continue reading
F1000 is composed of approximately 5,000 international clinical and research experts who recommend what they believe are the most important articles in their field, rating them and providing brief explanations for their selections.
Accord Alliance advisory board member David Sandberg, Ph.D. and colleagues make recommendations on studies pertaining to disorders of sex development and they are reprinted here with permission of F1000. Authors of commentaries do not receive any compensation for their effort and freely choose the articles to review.
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Erica M Weidler 1, Kristina I Suorsa-Johnson 2, Alison S Baskin 3, Angela Fagerlin 4, Melissa D Gardner 5, Meilan M Rutter 6, Tara Schafer-Kalkhoff 7, Kathleen van Leeuwen 1, David E Sandberg 8 Affiliations expand Abstract Objective: Secrecy about a child’s difference of sex development (DSD) can lead to internalized shame and stigma. We explored how teenagers and … Continue reading
Mindfulness can mean different things to different people depending on circumstances or situation. What is important to know is YOUR value and the tremendous potential you have to offer. YOUR potential can only be fully realized for others to witness … Continue reading
Meilan M Rutter 1 2 3, Miriam Muscarella 1 4 5, Janet Green 1 4, Gnendy Indig 1 4 6, Alexandra von Klan 1 4 7, Kimberly Kennedy 1 3, Erica M Weidler1 4 8, Margaret Barrett 9, David E Sandberg 1 10, DSD-Translational Research Network PMID: 35636406 DOI: 10.1159/000524629 Abstract Introduction: People with differences of sex development (DSD) and their families need education about these conditions while receiving emotional and peer support … Continue reading
Liao L, Hegarty P, Creighton S, Lundberg T, Roen K. BMJ Open 2019 Jun 05 http://dx.doi.org/10.1136/bmjopen-2018-025821 Abstract Objectives Clitoral surgery on minors diagnosed with differences of sex development is increasingly positioned as a violation of human rights. This qualitative study identified how … Continue reading
Research article published in an issue of the Journal of Pediatric Urology (https://www.ncbi.nlm.nih.gov/pubmed/28713007). Future fertility for individuals with differences of sex development: Parent attitudes and perspectives about decision-making Authors: Emilie K. Johnson, Ilina Rosoklija, Angela Shurba, Anthony D’Oro, Elisa J. … Continue reading
Research article published in an issue of the European Journal of Endocrinology (https://www.ncbi.nlm.nih.gov/pubmed/?term=28705803). Clinical practice guidelines for the care of girls and women with Turner syndrome: Proceedings from the 2016 Cincinnati International Turner Syndrome Meeting Authors: Claus H Gravholt, Niels … Continue reading
Research article published in an issue of the journal Transgender Health; widely available via PubMed Commons (PMC) (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5549540/). Fertility-Related Care for Gender and Sex Diverse Individuals: A Provider Needs-Assessment Survey Authors: Emilie K. Johnson, Diane Chen, Elisa J. Gordon, Ilina … Continue reading
Research article published in a special issue of the American Journal of Medical Genetics (http://onlinelibrary.wiley.com/doi/10.1002/ajmg.c.v175.2/issuetoc). Disorders of sex development (DSD): Clinical service delivery in the United States Authors: Aimee M. Rolston, Melissa Gardner, Kathleen van Leeuwen, Lauren Mohnach, Catherine Keegan, … Continue reading
Research article published in a special issue of the American Journal of Medical Genetics (http://onlinelibrary.wiley.com/doi/10.1002/ajmg.c.v175.2/issuetoc). Interdisciplinary care in disorders/differences of sex development (DSD): The psychosocial component of the DSD- Translational research network. Authors: David E. Sandberg, Melissa Gardner, Nina Callens, … Continue reading
