Programs
We are working on a number of initiatives to expand our reach nationally and meet the needs of all persons and families affected by DSD. Our programs include:
- Piloting a DSD model of care and guidelines, including training and support for interdisciplinary healthcare teams and decision aides for families and providers;
- Co-hosting a DSD Research and Quality Improvement Symposium in the Spring of 2009 with the University of Michigan;
- Continuously expanding our website to provide targeted information for patients, families, clinicians, and researchers;
- Producing an informational video to increase awareness of DSD and educate the general public about DSD care and treatment; and
- Developing a teacher's kit to guide college-level courses on intersex and DSD history and current treatment paradigms.
Please continue to visit our website to learn more about these iniatives as we implement them. We also want to hear your thoughts about how we can make these projects successful, or how you may be able to support us in our efforts.
Working Together to Improve Care
Latest
- New Article on Developing Multidisciplinary Teams
- Summary: Improving Collaboration and Communication in DSD Care Meeting in OKC
- Your Child Resources and Links
- New Support Groups Formed at LIJ/Cohen Medical Center
- Pediatric Gynecology as a Critical Component of Surgical and Non-Surgical DSD Care
- Report from the 2011 Hypospadias and Epispadias Meeting
Quality Care Indicators
View a summary of indicators of high-quality interdisciplinary care for children with disorders of sex development (DSD).
Review Expert Presentations
Pediatric Academic Societies Mini-Course on DSD Disclosure, University of Michigan DSD Research and Quality Improvement Symposium, and more.
Questions Answered
Find clear answers to common questions about disorders of sex development (DSD) at Accord Alliance's Frequently Asked Questions page.
Clinical Pearls
At the Accord Alliance blog, specialists on dedicated DSD teams share their experiences with team-building, reimbursement issues, and more.
Meetings Upcoming
Find dates and informational links for conferences on disorders of sex development (DSD), including meetings of clinicians and support groups.